"Once our eyes are opened, we can't pretend we don't know what to do.
God, who weighs our hearts and keeps our souls, knows what we know,
and holds us responsible to act." Prov 24:12

Saturday, June 25, 2011

Thank You!

Thank you all so much for all the advice, encouragement and support so far!!! It has helped a lot to just hear your stories and to read all the different ideas posted. There must have been a lot of prayers too for Sasha and our family last night because he did something quite extraordinary today (well, extraordinary for us anyway) and he wanted to share a video of him to show everyone. Thank you again!

video

Oh, and this is what the KLOVE Encouraging Word of the Day was today when I opened my email. Funny how things work like that!

Get all the advice and instruction you can, so you will be wise the rest of your life.
~ Proverbs 19:20

3 comments:

  1. Ok, is he too cute or what??? And YAY for new steps!!!! So I'm adding to my opinion now that I've seen this video. You said in your previous post that Sasha knows how to chew, because he chews on his chewy thing. But doing that is much different than chewing AND moving food around in your mouth at the same time. What did the OT say he's doing with the food once it's in his mouth? It looks like has a hard time figuring out what to do with food in his mouth while at the same time chewing. That takes a lot of coordination, to chew AND use your tongue to control the food, get it to the back of your throat, AND safely swallow it. This skill, as you know is develops as a young toddler, but first they have to develop a good swallow as an infant. I don't know if they showed you the bottles used in the orphanage, but they cut a HUGE hole in them, so the babies just let it pour down their throats. There is no such thing as developing their tongue coordination, which is needed later for eating solids. Your ST can tell you, based on what sounds are difficult for him to make, what coordination problems he's going to have with eating. My guess is he mostly uses the back of his tongue, and not the front so much. it might be that some of the coordination problems are related to his smaller lower jaw. Yes, I'm guessing based on one 30 second video, but that guess is that some of the behavioral problems are stemming from mechanical and/or structural problems.

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  2. YAY!!! He's so darn cute!!! My daughter Olivia (4) loved watching him! :) Mel

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  3. Prayers will continue for you guys! Soak up this small victory!

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